Life Doesn’t Stop For Autism, Or Anything
July 25th, 2009
Today I got Will’s assesments from the specialists from the last year, and it was heartbreaking.
To know how far he’s come since the journey began, and how far he has left to go is a difficult task.
And to know in many ways, Matty is so much worse than William ever was at this age leaves my heart in peices.
Every day we celebrate the little things. Something so mundane as staying dry through the night is a big event. Eating all their dinner, or eating at all is a big celebration. Small things become little triumphs, and when you focus so much on the little triumphs, the big issues don’t seem so big. And when they are no longer so big, they feel like something that can be dealt with, something that one day we will overcome.
We’ve learned we can’t plan ahead, and that we have to plan ahead. Catch 22…If we don’t prepare the boys enough, it’ll be a very rough day, if we ourselves plan too far in advance, the day may come, and we may be unable to undertake any such tasks for the mood the boys awake in.
But life keeps on moving, because it doesn’t stop for anything. Even heart break such as the one I had today. Sometimes I watch them sleep, and wonder if they will ever be okay? Will they ever graduate, have a girlfriend, get married, or will they forever be lost in their own little worlds. I hope one day they will have the life all children deserve, till then we will keep in fighting, for life doesn’t stop for autism, or anything.



